You know the times you run low on your meds, and you just call the pharmacy and get more?
Yeah, well, that’s now how it worked this time… 🤦♂️
Dusty told us he had one of his meds… “One pill mom” 😳😳😳
Yeah, ummmm… majority of the time, it’s no big deal. Even though we have been trying to get him to understand that he needs to tell us a lot sooner.
I keep his bottles of meds in our closet.
I go in the bedroom, pull out the bag, and look through the bottles.
Crashout out in 3,2,1…
OMG, WTF!!!!
His bottle of medicine is for one of his seizure meds. It was filled May 30 and was supposed to be for a 90-day supply.
He had one pill left somehow.
He only takes one pill per night.
We were missing 30 days worth.
I still don’t understand how.
30 days of this medication is well over two thousand dollars.
This is an expensive medicine, and this freaks me out missing this much.
I have searched high and low, diagnolly, vertically, and internally.
I don’t know where the hell it is.
I slept like shit all night, knowing it’s now Friday and impossible to get this medication this week.
The pharmacy always has to order this medication.
Even if they ordered it, it wouldn’t get here til at least Monday.
He had one pill, and that meant one dose.
I spent ALL DAY CALLING COUNTLESS PHARMACIES. One after another, small, independent, etc. No one was left out.
I called and Walmart location assuming they wouldn’t have it, but was going to see where in their network had some.
Come to find out a generic of this medication had been released and they just happened to have some.
Now, I have a friend who is a pharmacy tech and worked for a pharmacy for years until they closed.
She told me about issues someone she knew taking this medication.
I forget how she worded it, but it isn’t exactly like the brand name med.
This worries me but worries me less than not having anything at all.
We were just told to monitor him more than normal while taking it.
He has 30 days’ worth, and we can fill the brand name in like 24 days.
In the meantime, we will just keep one eye open, his VNS magnet handy, and the Ativan ready to administer.
To top that off, his VNS battery is down to eleven percent.
The doctor is setting up the referral to get it replaced since it’s been almost 9 years since it was put in.
The problem is that the vascular surgeon who did it is, I believe, retired or no longer in our area.
So the doctor has to find a new surgeon that is familiar with the device and is doing the surgeries.
Not to mention, this has to be done with a sense of urgency since the battery is getting low.
Fun times, isn’t it?
