Tag: epilepsy
Family
Under the weather
Originally posted 2020-03-17 21:09:26. I’m a little bit under the weather. Low grade fever and little runny nose/post nasal drip. I’ve notified my doctor. They will monitor my situation. I am to remain at home. My biggest issue is my son. Normally the moment someone in our house gets sick it is a given he gets it. So fingers crossed this is just allergies or a cold or something minimal. I do not meet criteria…
Family
Ultrasound treatment for Epilepsy
Originally posted 2019-01-31 09:10:18. In a first-in-world clinical trial, researchers at The Ohio State University College of Medicine are studying how well focused ultrasound surgery works in adults with a specific type of epilepsy whose seizures are not controlled by medication. Up to 10 adults with the “medically refractory lobe focal onset” type of epilepsy will be enrolled in this study. The technique uses magnetic resonance-guided focused ultrasound through an intact skull to reach tissue deep in the brain…
Family
Just how many seizures is he having, we’ll find out.
Originally posted 2014-10-28 21:19:24. You live with someone who has seizures you are always on the look out for the next one. In Dusty’s case we never know if he is sitting there having one don’t realize know it. We have been trying to figure out just how many seizures he is having so that the doctors can try to better control them. It’s a constant battle. I love my child but there are plenty…
Family
There is a reason we are here, just not sure yet why.
Originally posted 2014-05-01 16:47:33. Have you ever wondered why you go through certain things in your life? Why you may suffer from events, diseases, or whatever you have gone through? Yeah, me too. As I have reached my fourth decade of life I look back and take accountability of the things that have gotten me here. I look at the things both of my children have had to go through being biracial, to the illnesses,…
Family
Wireless pacemaker
Originally posted 2019-01-07 10:00:35. In order to find new and better ways to treat neurological diseases, scientists have created a wireless ‘pacemaker for the brain’ that monitors brain’s activity and stimulates electric currents simultaneously. Researchers at University of California, Berkeley, have created a device called WAND that works like a ‘pacemaker for the brain’, as they call it. The device works similar to a heart pacemaker, monitoring brain’s electrical activity and stimulating electric current in…
Family
Seizures and what you did or did not know
Originally posted 2014-04-15 22:05:01. My son had his first seizure at two weeks old. The foster parent called it ”tremors”. He was diagnosed within his first two years after extensive testing. They could not figure out what all was wrong. Between him getting so sick so often and the seizures we frequented Duke Hospital in Durham NC. He had epileptic seizures but because part of his brain didn’t develop they could not say it was epilepsy. Today…
Family
Nightwatch
Originally posted 2018-12-29 10:00:11. The high-tech armband that could prevent night-time epilepsy deaths The gadget, called NightWatch, could reduce the number of lives lost to SUDEP Stands for Sudden Unexpected Death in Epilepsy, which usually occurs at night Around 600,000 people in the UK have epilepsy — that’s around 1 in 103 people https://www.dailymail.co.uk/health/article-6481301/Would-wear-arm-band-prevent-night-time-epilepsy-deaths.
Family
The beginning of the toxic relationship
Originally posted 2014-03-18 20:58:28. It was 1992, I was working at Pizza Hut as a waitress and living with a couple who took me in. I met her after committing myself to a mental hospital after being raped by an ex-boyfriends uncle who I thought I could trust. He kept me locked up in the bedroom for weeks. I would try to escape and he would come find me. I tried to tell my boyfriend…
Family
An invitation to our lives
Originally posted 2014-03-18 17:34:02. So here it is. The start, the beginning. Although I am a bit unsure how to do this so bear with me. I have been told on several occasions that I ought to ”write a book” about our lives. I am not beyond sharing our story I just don’t want the ”wrong” attention. You have people who are always going to be the skeptic, the non-believer, the supporter, etc…well I…