Originally posted 2014-03-18 20:58:28. It was 1992, I was working at Pizza Hut as a waitress and living with a couple who took me in. I met her after committing myself to a mental hospital after being raped by an ex-boyfriends uncle who I thought I could trust. He kept me locked up in the bedroom for weeks. I would try to escape and he would come find me. I tried to tell my boyfriend…
Originally posted 2014-03-18 17:34:02. So here it is. The start, the beginning. Although I am a bit unsure how to do this so bear with me. I have been told on several occasions that I ought to ”write a book” about our lives. I am not beyond sharing our story I just don’t want the ”wrong” attention. You have people who are always going to be the skeptic, the non-believer, the supporter, etc…well I…
Originally posted 2018-11-10 10:00:06. https://health.usnews.com/health-care/patient-advice/articles/2018-10-11/what-are-the-treatment-options-for-drug-resistant-epilepsy
Originally posted 2016-05-31 20:51:51. As we all have seen in the news the zika virus has spread across many states in the US. To my knowledge there has only been a few confirmed positive with the virus. Since the virus itself has varying symptoms and affects on each individual I needed to find a way to try and somehow combat the ones we have here. With all the rain we have had and is forecasted…
Originally posted 2016-03-22 22:35:44. For several weeks now I have been waiting on the insurance approvals for this device to be implanted in Dusty in order to hopefully achieve a reduction of his overall seizure activity. Whether it works or not remains to be seen but all the research and people who have used it show at least some chance of it helping. Just how much it helps is the question. Dusty already takes three…
Originally posted 2018-11-02 20:30:00. To kick off November National Epilepsy Awareness Month, the Danny Did Foundation is proud to share their new awareness video. The narration is by Danny’s younger brother, Tommy. If you or your family is impacted by epilepsy, we encourage you to take time this month to tell your story. No one can do it better than you! ‘ENJOY LIFE’ SOCK AVAILABLE During November National Epilepsy Awareness Month only, our new “Enjoy…
Originally posted 2015-08-27 02:24:52. Have you ever been in one of those periods where you really just want to disconnect from the world around you and just immerse yourself in your own little bubble? Yeah, well that is kind of where I have been this past several, several weeks. Dealing with my husband and his “service connected issues” to Dusty and well all that comes with him, trying to get his seizures controlled enough to…
Originally posted 2014-11-17 20:07:23. We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements. We have wondered for a while now if some of those random movements Dusty makes were muscle spasms or actual seizure activity. We got an answer to some of that this past week. The results of the…
Originally posted 2014-11-02 00:49:03. On the last day of the EEG testing and it had gone so well…but wait, there is more. So the technician was scheduled to be here around 9am so I wake Dusty up at 8:30am so that he could take his medications and be ready when he got here. He gets up, uses the bathroom, and then goes into the kitchen to get his cup of water to start to take…