Originally posted 2015-08-27 02:24:52. Have you ever been in one of those periods where you really just want to disconnect from the world around you and just immerse yourself in your own little bubble? Yeah, well that is kind of where I have been this past several, several weeks. Dealing with my husband and his “service connected issues” to Dusty and well all that comes with him, trying to get his seizures controlled enough to…
Originally posted 2014-11-17 20:07:23. We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements. We have wondered for a while now if some of those random movements Dusty makes were muscle spasms or actual seizure activity. We got an answer to some of that this past week. The results of the…
Originally posted 2014-11-02 00:49:03. On the last day of the EEG testing and it had gone so well…but wait, there is more. So the technician was scheduled to be here around 9am so I wake Dusty up at 8:30am so that he could take his medications and be ready when he got here. He gets up, uses the bathroom, and then goes into the kitchen to get his cup of water to start to take…
Originally posted 2017-12-18 10:32:36. http://www.pbs.org/program/seized-inside-mystery-epilepsy/
Originally posted 2019-05-22 11:23:54. This was a post from 2016 that never got published lol Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on overload and at risk of burning out? Well that is where I am this week. James’s been at home because the employer he was working for did not get awarded the next contract for the job. So,…
Originally posted 2020-03-17 21:09:26. I’m a little bit under the weather. Low grade fever and little runny nose/post nasal drip. I’ve notified my doctor. They will monitor my situation. I am to remain at home. My biggest issue is my son. Normally the moment someone in our house gets sick it is a given he gets it. So fingers crossed this is just allergies or a cold or something minimal. I do not meet criteria…
Originally posted 2019-01-31 09:10:18. In a first-in-world clinical trial, researchers at The Ohio State University College of Medicine are studying how well focused ultrasound surgery works in adults with a specific type of epilepsy whose seizures are not controlled by medication. Up to 10 adults with the “medically refractory lobe focal onset” type of epilepsy will be enrolled in this study. The technique uses magnetic resonance-guided focused ultrasound through an intact skull to reach tissue deep in the brain…
Originally posted 2014-10-28 21:19:24. You live with someone who has seizures you are always on the look out for the next one. In Dusty’s case we never know if he is sitting there having one don’t realize know it. We have been trying to figure out just how many seizures he is having so that the doctors can try to better control them. It’s a constant battle. I love my child but there are plenty…