Tagged: seizures

Blame me, shame me

We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements....

Seizing Halloween

On the last day of the EEG testing and it had gone so well…but wait, there is more. So the technician was scheduled to be here around 9am so I wake Dusty up at...

Life is precious

My son… silly that he looks like he works out but he only works fork to mouth. You can see the vagal nerve stimulator in his chest to aid with his intractable seizure disorder...

Circuits Overload

This was a post from 2016 that never got published lol Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on...

Pandemic Appointments

This is going to be fun, NOT! Dusty has a neurology appointment and they won’t do telehealth appointments for some reason. So we shall see how this goes. Have you had to take your...

Say what?!

Would you believe I just got this bill out of no where? This stems from my son’s oral maxillofacial surgery in 2013. All costs were supposed to be covered by insurance and grants from...