Family

There is a reason we are here, just not sure yet why.

Originally posted 2014-05-01 16:47:33. Have you ever wondered why you go through certain things in your life? Why you may suffer from events, diseases, or whatever you have gone through? Yeah, me too. As I have reached my fourth decade of life I look back and take accountability of the things that have gotten me here. I look at the things both of my children have had to go through being biracial, to the illnesses,…

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Family

Wireless pacemaker

Originally posted 2019-01-07 10:00:35. In order to find new and better ways to treat neurological diseases, scientists have created a wireless ‘pacemaker for the brain’ that monitors brain’s activity and stimulates electric currents simultaneously. Researchers at University of California, Berkeley, have created a device called WAND that works like a ‘pacemaker for the brain’, as they call it. The device works similar to a heart pacemaker, monitoring brain’s electrical activity and stimulating electric current in…

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Family

Seizures and what you did or did not know

Originally posted 2014-04-15 22:05:01. My son had his first seizure at two weeks old. The foster parent called it ”tremors”. He was diagnosed within his first two years after extensive testing. They could not figure out what all was wrong. Between him getting so sick so often and the seizures we frequented Duke Hospital in Durham NC. He had epileptic seizures but because part of his brain didn’t develop they could not say it was epilepsy. Today…

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Family

Nightwatch

Originally posted 2018-12-29 10:00:11. The high-tech armband that could prevent night-time epilepsy deaths The gadget, called NightWatch, could reduce the number of lives lost to SUDEP Stands for Sudden Unexpected Death in Epilepsy, which usually occurs at night  Around 600,000 people in the UK have epilepsy — that’s around 1 in 103 people https://www.dailymail.co.uk/health/article-6481301/Would-wear-arm-band-prevent-night-time-epilepsy-deaths.

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Family

Some of the early years

Originally posted 2014-03-19 15:24:53. Listening to the not-so-good advice of my biological father I put my son up for adoption when I had him. On the 3rd day at the hospital I went one way and watched as he went with the foster care/social services worker. I cried thinking at the same time it would be the best thing for him. He was placed in a foster home. His name was “Alex” while in foster…

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Family

The beginning of the toxic relationship

Originally posted 2014-03-18 20:58:28. It was 1992, I was working at Pizza Hut as a waitress and living with a couple who took me in. I met her after committing myself to a mental hospital after being raped by an ex-boyfriends uncle who I thought I could trust. He kept me locked up in the bedroom for weeks. I would try to escape and he would come find me. I tried to tell my boyfriend…

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Family

An invitation to our lives

Originally posted 2014-03-18 17:34:02.   So here it is. The start, the beginning. Although I am a bit unsure how to do this so bear with me. I have been told on several occasions that I ought to ”write a book” about our lives. I am not beyond sharing our story I just don’t want the ”wrong” attention. You have people who are always going to be the skeptic, the non-believer, the supporter, etc…well I…

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Family

Time for another one

Originally posted 2022-11-22 09:16:00. All I want to do is just UGHHHHHHHHHHHH Ever get that feeling? Where you just want to scream STOP!! Like WTF!! Yeah… well that is how I feel right now. Yesterday, when I took Dusty to his neurology appointment we were told time to replace the batteries in his VNS device. Yes, I know… it is just a simple little surgery to change the batteries. Let me explain why I just…

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