Originally posted 2015-08-27 02:24:52. Have you ever been in one of those periods where you really just want to disconnect from the world around you and just immerse yourself in your own little bubble? Yeah, well that is kind of where I have been this past several, several weeks. Dealing with my husband and his “service connected issues” to Dusty and well all that comes with him, trying to get his seizures controlled enough to…
Originally posted 2014-11-17 20:07:23. We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements. We have wondered for a while now if some of those random movements Dusty makes were muscle spasms or actual seizure activity. We got an answer to some of that this past week. The results of the…
Originally posted 2014-11-02 00:49:03. On the last day of the EEG testing and it had gone so well…but wait, there is more. So the technician was scheduled to be here around 9am so I wake Dusty up at 8:30am so that he could take his medications and be ready when he got here. He gets up, uses the bathroom, and then goes into the kitchen to get his cup of water to start to take…
Originally posted 2019-06-01 06:17:25. My son… silly that he looks like he works out but he only works fork to mouth. You can see the vagal nerve stimulator in his chest to aid with his intractable seizure disorder – I never thought I’d see him reach 25 years old. He’s had meningitis and with his immune system the way it is they weren’t sure if he’d be able to fight it. My momma was there…
Originally posted 2017-12-18 10:32:36. http://www.pbs.org/program/seized-inside-mystery-epilepsy/
Originally posted 2019-05-22 11:23:54. This was a post from 2016 that never got published lol Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on overload and at risk of burning out? Well that is where I am this week. James’s been at home because the employer he was working for did not get awarded the next contract for the job. So,…
Originally posted 2020-06-24 18:29:06. This is going to be fun, NOT! Dusty has a neurology appointment and they won’t do telehealth appointments for some reason. So we shall see how this goes. Have you had to take your special needs child/adult into the office during this time? What did you do different to take precautions?
Originally posted 2019-03-15 05:00:10. Would you believe I just got this bill out of no where? This stems from my son’s oral maxillofacial surgery in 2013. All costs were supposed to be covered by insurance and grants from the state. First and last time I received anything regarding a bill was a year after the surgery. Then, today. I am not really sure what to do but we sure as hell can’t afford this. ♀️♀️♀️♀️