Family

Life is precious

Originally posted 2019-06-01 06:17:25. My son… silly that he looks like he works out but he only works fork to mouth. You can see the vagal nerve stimulator in his chest to aid with his intractable seizure disorder – I never thought I’d see him reach 25 years old. He’s had meningitis and with his immune system the way it is they weren’t sure if he’d be able to fight it. My momma was there…

Continue reading

Family

Circuits Overload

Originally posted 2019-05-22 11:23:54. This was a post from 2016 that never got published lol Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on overload and at risk of burning out? Well that is where I am this week. James’s been at home because the employer he was working for did not get awarded the next contract for the job. So,…

Continue reading

Family

Say what?!

Originally posted 2019-03-15 05:00:10. Would you believe I just got this bill out of no where? This stems from my son’s oral maxillofacial surgery in 2013. All costs were supposed to be covered by insurance and grants from the state. First and last time I received anything regarding a bill was a year after the surgery. Then, today. I am not really sure what to do but we sure as hell can’t afford this. ‍♀️‍♀️‍♀️‍♀️

Continue reading

Family

Ultrasound treatment for Epilepsy

Originally posted 2019-01-31 09:10:18. In a first-in-world clinical trial, researchers at The Ohio State University College of Medicine are studying how well focused ultrasound surgery works in adults with a specific type of epilepsy whose seizures are not controlled by medication. Up to 10 adults with the “medically refractory lobe focal onset” type of epilepsy will be enrolled in this study. The technique uses magnetic resonance-guided focused ultrasound through an intact skull to reach tissue deep in the brain…

Continue reading

Family

Just how many seizures is he having, we’ll find out.

Originally posted 2014-10-28 21:19:24. You live with someone who has seizures you are always on the look out for the next one. In Dusty’s case we never know if he is sitting there having one don’t realize know it. We have been trying to figure out just how many seizures he is having so that the doctors can try to better control them. It’s a constant battle. I love my child but there are plenty…

Continue reading

Family

Another day of parenting

Originally posted 2014-10-14 19:30:12. One of my biggest struggles with my son is his ability to understand that even though he is 21 years old he doesn’t have the mind of a 21 year old. He thinks because he is 21 he should be able to do as he pleases. He is able to see others like his sister who is able to do things that he isn’t. It is a constant struggle with him…

Continue reading