Family

Cholesteatoma

Originally posted 2020-04-27 09:03:16. Cholesteatoma is a serious but treatable ear condition that can only be diagnosed by medical examination. Persisting earache, ear drainage, ear pressure, hearing loss, dizziness, or facial muscle weakness signals the need for evaluation by an otolaryngologist. My son, Dusty, had this years ago. I admit hearing he had a tumor in between his brain and his ear was a bit jarring. I mean who wouldn’t react that way to hearing the word, tumor?…

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Family

Say what?!

Originally posted 2019-03-15 05:00:10. Would you believe I just got this bill out of no where? This stems from my son’s oral maxillofacial surgery in 2013. All costs were supposed to be covered by insurance and grants from the state. First and last time I received anything regarding a bill was a year after the surgery. Then, today. I am not really sure what to do but we sure as hell can’t afford this. ‍♀️‍♀️‍♀️‍♀️

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Family

Telemed Appointments

Originally posted 2020-04-21 10:50:42. You know this coronavirus quarantine stuff has its ups and downs. One plus for me is not having to go into a crowded office and having to sit in a overpopulated waiting room. Since Dusty’s immune system is already compromised this is a huge weight off my shoulders! Alot of the patients that are in one of the doctor’s offices are children. As we know as children we didn’t think about…

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Family

Conversations Part 1

Originally posted 2019-03-14 11:09:14. This was a “conversation” between my son and I this morning. This is just one example of how autism is in our home. Dusty – “It’s almost the 15th.” Me – “What’s the 15th?” Dusty – “therapy appointment at 11:30” Me – “oh” Dusty – “if I go to bed early and eat burritos for dinner…” Me – “Dusty go eat your cereal” This Kid. ‍♀️ 15 Classes for $15 –…

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Family

Recognizing signs of child’s anxiety

Originally posted 2017-08-19 14:39:16. My son has anxiety. It is far more than just a bit of worry that can be soothed away with some reassuring words of encouragement. It plays a big part in his life, and it is important we take it seriously. His worries seemed to grow as he was growing up. But at the time we didn’t realize all the different behaviors we saw were driven by his anxiety. And the more…

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Family

My heart is breaking

Originally posted 2018-06-15 14:38:27. This will be the hardest thing I have ever done. I have to somehow suppress the expression on my face because Dusty is watching me like a hawk. He knows something is up. This hurts so much. I don’t know how to let go of my mother. I don’t know how to live my life without her. I don’t know how I will ever explain it to Dusty. I pray to…

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Family

Trust me, I get it

Originally posted 2020-04-10 08:00:54. I’ve heard Pure Romance just isn’t my thing. I get it, trust me. I am an approaching 50 year old married southern woman. The mom and caregiver for my 26 year old special needs autistic son. The wife and caregiver of a disabled Marine Corps veteran. I have my faith but not attached to any specific religion but I do believe. I have gone through alot of traumatic experiences as a…

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Family

Originally posted 2018-06-12 13:09:01. I need your prayers, miracles. My heart hurts and I just can’t do life without my momma. She is in the fight for life and I will likely not be on social media much. Her kidneys took a hit and need to heal in order for them to do any chemo or radiation. Cancer is in her liver and lungs and they need to see if it is in her brain…

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