Family

Wireless pacemaker

Originally posted 2019-01-07 10:00:35. In order to find new and better ways to treat neurological diseases, scientists have created a wireless ‘pacemaker for the brain’ that monitors brain’s activity and stimulates electric currents simultaneously. Researchers at University of California, Berkeley, have created a device called WAND that works like a ‘pacemaker for the brain’, as they call it. The device works similar to a heart pacemaker, monitoring brain’s electrical activity and stimulating electric current in…

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Family

Seizures and what you did or did not know

Originally posted 2014-04-15 22:05:01. My son had his first seizure at two weeks old. The foster parent called it ”tremors”. He was diagnosed within his first two years after extensive testing. They could not figure out what all was wrong. Between him getting so sick so often and the seizures we frequented Duke Hospital in Durham NC. He had epileptic seizures but because part of his brain didn’t develop they could not say it was epilepsy. Today…

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Family

Nightwatch

Originally posted 2018-12-29 10:00:11. The high-tech armband that could prevent night-time epilepsy deaths The gadget, called NightWatch, could reduce the number of lives lost to SUDEP Stands for Sudden Unexpected Death in Epilepsy, which usually occurs at night  Around 600,000 people in the UK have epilepsy — that’s around 1 in 103 people https://www.dailymail.co.uk/health/article-6481301/Would-wear-arm-band-prevent-night-time-epilepsy-deaths.

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Family

The beginning of the toxic relationship

Originally posted 2014-03-18 20:58:28. It was 1992, I was working at Pizza Hut as a waitress and living with a couple who took me in. I met her after committing myself to a mental hospital after being raped by an ex-boyfriends uncle who I thought I could trust. He kept me locked up in the bedroom for weeks. I would try to escape and he would come find me. I tried to tell my boyfriend…

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Family

An invitation to our lives

Originally posted 2014-03-18 17:34:02.   So here it is. The start, the beginning. Although I am a bit unsure how to do this so bear with me. I have been told on several occasions that I ought to ”write a book” about our lives. I am not beyond sharing our story I just don’t want the ”wrong” attention. You have people who are always going to be the skeptic, the non-believer, the supporter, etc…well I…

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Family

The fight against a virus

Originally posted 2016-05-31 20:51:51. As we all have seen in the news the zika virus has spread across many states in the US. To my knowledge there has only been a few confirmed positive with the virus. Since the virus itself has varying symptoms and affects on each individual I needed to find a way to try and somehow combat the ones we have here. With all the rain we have had and is forecasted…

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Family

Time to try a new therapy

Originally posted 2016-03-22 22:35:44. For several weeks now I have been waiting on the insurance approvals for this device to be implanted in Dusty in order to hopefully achieve a reduction of his overall seizure activity. Whether it works or not remains to be seen but all the research and people who have used it show at least some chance of it helping. Just how much it helps is the question. Dusty already takes three…

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Family

November is National Epilepsy Awareness Month

Originally posted 2018-11-02 20:30:00. To kick off November National Epilepsy Awareness Month, the Danny Did Foundation is proud to share their new awareness video. The narration is by Danny’s younger brother, Tommy. If you or your family is impacted by epilepsy, we encourage you to take time this month to tell your story. No one can do it better than you! ‘ENJOY LIFE’ SOCK AVAILABLE  During November National Epilepsy Awareness Month only, our new    “Enjoy…

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