Originally posted 2021-01-13 09:28:48. The day started like any other. I try not to let Dusty know he has an appointment because he will not sleep and get up at the butt crack of dawn. He had an appointment at his neurologist’s office but not with the neurologist. He was seeing the doctor who handles his VNS (vagal nerve stimulator). They were checking the battery and other information that it holds. He had it surgically…
Originally posted 2018-11-02 20:30:00. To kick off November National Epilepsy Awareness Month, the Danny Did Foundation is proud to share their new awareness video. The narration is by Danny’s younger brother, Tommy. If you or your family is impacted by epilepsy, we encourage you to take time this month to tell your story. No one can do it better than you! ‘ENJOY LIFE’ SOCK AVAILABLE During November National Epilepsy Awareness Month only, our new “Enjoy…
Originally posted 2016-02-01 13:43:35. As most may know this has been in the news a lot lately. What some of you may not know is that my son was also born with microcephaly. Yes, I admit when I was young I didn’t know what to expect with my child having this. I opted to give him up for adoption. Ultimately, I decided to raise my son the best way I knew how. He wasn’t diagnosed…
Originally posted 2018-10-30 09:05:47. Hope this is not an early indicator of how my day will go but you see his medicine, his cup of water, a powerade, and the magnet for his VNS stimulator inside his chest.
Originally posted 2016-01-08 22:58:17. It’s now 2016. Who would have ever thought we’d see these days come and not be in flying cars like the Jetson’s cartoons. It seemed so doable back them and to now look back on just how far we haven’t come, it makes one wonder just what our future really holds. Time went so fast in the last month of 2015. December came and went in a flash. Maybe it is…
Originally posted 2015-08-27 02:24:52. Have you ever been in one of those periods where you really just want to disconnect from the world around you and just immerse yourself in your own little bubble? Yeah, well that is kind of where I have been this past several, several weeks. Dealing with my husband and his “service connected issues” to Dusty and well all that comes with him, trying to get his seizures controlled enough to…