Family

Circuits Overload

Originally posted 2019-05-22 11:23:54. This was a post from 2016 that never got published lol Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on overload and at risk of burning out? Well that is where I am this week. James’s been at home because the employer he was working for did not get awarded the next contract for the job. So,…

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Generic

You know the times you run low on your meds, and you just call the pharmacy and get more? Yeah, well, that’s now how it worked this time… šŸ¤¦ā€ā™‚ļø Dusty told us he had one of his meds… “One pill mom” 😳😳😳 Yeah, ummmm… majority of the time, it’s no big deal. Even though we have been trying to get him to understand that he needs to tell us a lot sooner. I keep his…

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Family

Under the weather

Originally posted 2020-03-17 21:09:26. I’m a little bit under the weather. Low grade fever and little runny nose/post nasal drip. I’ve notified my doctor. They will monitor my situation. I am to remain at home. My biggest issue is my son. Normally the moment someone in our house gets sick it is a given he gets it. So fingers crossed this is just allergies or a cold or something minimal. I do not meet criteria…

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Ultrasound treatment for Epilepsy

Originally posted 2019-01-31 09:10:18. In a first-in-world clinical trial, researchers at The Ohio State University College of Medicine are studying how well focused ultrasound surgery works in adults with a specific type of epilepsy whose seizures are not controlled by medication. Up to 10 adults with the ā€œmedically refractory lobe focal onsetā€ type of epilepsy will be enrolled in this study. The technique uses magnetic resonance-guided focused ultrasound through an intact skull to reach tissue deep in the brain…

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Just how many seizures is he having, we’ll find out.

Originally posted 2014-10-28 21:19:24. You live with someone who has seizures you are always on the look out for the next one. In Dusty’s case we never know if he is sitting there having one don’t realize know it. We have been trying to figure out just how many seizures he is having so that the doctors can try to better control them. It’s a constant battle. I love my child but there are plenty…

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There is a reason we are here, just not sure yet why.

Originally posted 2014-05-01 16:47:33. Have you ever wondered why you go through certain things in your life? Why you may suffer from events, diseases, or whatever you have gone through? Yeah, me too. As I have reached my fourth decade of life I look back and take accountability of the things that have gotten me here. I look at the things both of my children have had to go through being biracial, to the illnesses,…

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Family

Wireless pacemaker

Originally posted 2019-01-07 10:00:35. In order to find new and better ways to treat neurological diseases, scientists have created a wireless ā€˜pacemaker for the brain’ that monitors brain’s activity and stimulates electric currents simultaneously. Researchers at University of California, Berkeley, have created a device called WAND that works like a ā€˜pacemaker for the brain’, as they call it. The device works similar to a heart pacemaker, monitoring brain’s electrical activity and stimulating electric current in…

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Family

Seizures and what you did or did not know

Originally posted 2014-04-15 22:05:01. My son had his first seizure at two weeks old. The foster parent called it ”tremors”. He was diagnosed within his first two years after extensive testing. They could not figure out what all was wrong. Between him getting so sick so often and the seizures we frequented Duke Hospital in Durham NC. He had epileptic seizuresĀ but because part of his brain didn’t develop they could not say it was epilepsy.Ā Today…

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Family

Nightwatch

Originally posted 2018-12-29 10:00:11. The high-tech armband that could prevent night-time epilepsy deaths The gadget, called NightWatch, could reduce the number of lives lost to SUDEP Stands for Sudden Unexpected Death in Epilepsy, which usually occurs at nightĀ  Around 600,000 people in the UK have epilepsy — that’s around 1 in 103 people https://www.dailymail.co.uk/health/article-6481301/Would-wear-arm-band-prevent-night-time-epilepsy-deaths.

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