seizure disorder

Seized – inside the mystery of epilepsy

By |May 30th, 2019|Family|0 Comments

http://www.pbs.org/program/seized-inside-mystery-epilepsy/

Originally posted 2017-12-18 10:32:36.

Call It Reefer Magic? FDA-Approved Cannabis-Based Drug Epidiolex Now for Sale in All 50 States

By |May 24th, 2019|Family|0 Comments

Just how many seizures is he having, we’ll find out.

By |January 30th, 2019|Family|0 Comments

You live with someone who has seizures you are always on the look out for the next one. In Dusty’s case we never know if he is sitting there having one don’t realize know it. We have been trying to figure out just how many seizures he is having so that the doctors can […]

Originally posted 2014-10-28 21:19:24.

There is a reason we are here, just not sure yet why.

By |January 10th, 2019|Family|0 Comments

Have you ever wondered why you go through certain things in your life? Why you may suffer from events, diseases, or whatever you have gone through? Yeah, me too. As I have reached my fourth decade of life I look back and take accountability of the things that have gotten me here. I look […]

Originally posted 2014-05-01 16:47:33.

Dusty’s Letter to Danny Did Foundation

By |December 31st, 2018|Family|0 Comments

Dusty wanted to thank them for sending us the monitor to help his mom, dad, and sister help him.

Originally posted 2014-04-16 00:27:41.

Seizures and what you did or did not know

By |December 29th, 2018|Family|0 Comments

My son had his first seizure at two weeks old. The foster parent called it ”tremors”. He was diagnosed within his first two years after extensive testing. They could not figure out what all was wrong. Between him getting so sick so often and the seizures we frequented Duke Hospital in Durham NC. He […]

Originally posted 2014-04-15 22:05:01.

The beginning of the toxic relationship

By |December 13th, 2018|Family|6 Comments

It was 1992, I was working at Pizza Hut as a waitress and living with a couple who took me in. I met her after committing myself to a mental hospital after being raped by an ex-boyfriends uncle who I thought I could trust. He kept me locked up in the bedroom for weeks. […]

Originally posted 2014-03-18 20:58:28.

Time to try a new therapy

By |November 4th, 2018|Family|0 Comments

For several weeks now I have been waiting on the insurance approvals for this device to be implanted in Dusty in order to hopefully achieve a reduction of his overall seizure activity. Whether it works or not remains to be seen but all the research and people who have used it show at least […]

Originally posted 2016-03-22 22:35:44.

Blame me, shame me

By |September 7th, 2018|Family|0 Comments

We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements. We have wondered for a while now if some of those random movements Dusty makes were muscle spasms or actual […]

Originally posted 2014-11-17 20:07:23.

Seizing Halloween

By |September 5th, 2018|Family|0 Comments

On the last day of the EEG testing and it had gone so well…but wait, there is more.
So the technician was scheduled to be here around 9am so I wake Dusty up at 8:30am so that he could take his medications and be ready when he got here. He gets up, uses the […]

Originally posted 2014-11-02 00:49:03.

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