Family

Well SHIT!

Originally posted 2021-06-01 15:00:56. This past weekend turned out to be one I’ll remember for a very long time. It started out where Saturday morning we picked up my husband’s dually pickup truck after the tires had been installed and the inspection had been done. We left and went to the gas station, got 10 gallons, just enough for now since he had a few things he needed to work on before he drives it…

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Family

I am still walking, breathing, talking, and I’m ok with that.

Originally posted 2014-04-23 13:35:05. Ok, from the first time I got sick, to the first surgery to the last. They all were needed for something. After 19 surgeries…let’s see. One of the bigger ones was the spinal fusion. November 2004. Went to the doctor for a CT/MRI follow-up. He tells me…you broke your spine. I literally thought he was playing. I mean come on. You are still walking and can feel yet you are telling…

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Family

Meet Rylei

Originally posted 2019-01-05 07:31:33. For starters, I want to warn you. These are very sensitive photos. Any negativity will land you banned. – C. Tilley Photography Have you ever seen a organ donation worker be brought to tears?? Well here’s your chance. Meet Rylei. The baby who will save many lives. This beautiful baby girl has a rare condition called Anencephaly. What happens with this condition is unlike most. Anencephaly is a serious birth defect in…

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Family

Dealing with everyday life

Originally posted 2014-04-18 10:58:58. Since my son and I both have multiple health issues it can make some of the seemingly most easiest things turn into something more challenging. Recently having had to explain myself to my biological father as to why I don’t have a full-time job. Without someone else understanding what exactly we are diagnosed with and what each one entails, they cannot fully understand the concept of living like we do. He…

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Family

Seizures and what you did or did not know

Originally posted 2014-04-15 22:05:01. My son had his first seizure at two weeks old. The foster parent called it ”tremors”. He was diagnosed within his first two years after extensive testing. They could not figure out what all was wrong. Between him getting so sick so often and the seizures we frequented Duke Hospital in Durham NC. He had epileptic seizures but because part of his brain didn’t develop they could not say it was epilepsy. Today…

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Family

Limitless Vision

I saw this video on Tiktok and had to share with y’all! Dive into a world of wonder and imagination with Salvatore’s Limitless Vision! Join Salvatore and his friends as they explore enchanting virtual realms where dreams come alive and limitations disappear. When Salvatore puts on his shiny new VR headset, he steps into a magical land filled with exciting adventures. From climbing tall mountains and dancing in green meadows to playing hide-and-seek with his best…

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Family

Some of the damage can’t be repaired

Originally posted 2014-04-11 12:35:08.   Ah, it’s Friday. This week has been on full blast. With my husband taking a class at a local college to events with the local chapter of Special Olympics…we normally stay busy. But we take it like it is. Some of the abuse I was victim to has had a lasting effect on our lives. Some of which is a daily reminder of what I went through. Even though I have been through…

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Family

Twelve to Twenty-Four

Originally posted 2023-01-29 10:30:39. I don’t know if I should chalk it up to stroke brain or just aging brain. Either way it is something my dogs will likely never forget. Our day started like any other… nothing special. I had to take my Kia to the dealership for some maintenance so we needed to get up and get ready so James could pick me up from the dealer. Had to be there at 8am…

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