As most may know this has been in the news a lot lately. What some of you may not know is that my son was also born with microcephaly. Yes, I admit when I was young I didn’t know what to expect with my child having this. I opted to give him up for […]
Originally posted 2016-02-01 13:43:35.
Hope this is not an early indicator of how my day will go but you see his medicine, his cup of water, a powerade, and the magnet for his VNS stimulator inside his chest.
Originally posted 2018-10-30 09:05:47.
It’s now 2016. Who would have ever thought we’d see these days come and not be in flying cars like the Jetson’s cartoons. It seemed so doable back them and to now look back on just how far we haven’t come, it makes one wonder just what our future really holds.
Time went so fast […]
Originally posted 2016-01-08 22:58:17.
Have you ever been in one of those periods where you really just want to disconnect from the world around you and just immerse yourself in your own little bubble? Yeah, well that is kind of where I have been this past several, several weeks. Dealing with my husband and his “service connected issues” […]
Originally posted 2015-08-27 02:24:52.
We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements. We have wondered for a while now if some of those random movements Dusty makes were muscle spasms or actual […]
Originally posted 2014-11-17 20:07:23.
On the last day of the EEG testing and it had gone so well…but wait, there is more.
So the technician was scheduled to be here around 9am so I wake Dusty up at 8:30am so that he could take his medications and be ready when he got here. He gets up, uses the […]
Originally posted 2014-11-02 00:49:03.
My son… silly that he looks like he works out but he only works fork to mouth.
You can see the vagal nerve stimulator in his chest to aid with his intractable seizure disorder – I never thought I’d see him reach 25 years old.
He’s had meningitis and with his immune system the way it […]
http://www.pbs.org/program/seized-inside-mystery-epilepsy/
Originally posted 2017-12-18 10:32:36.
This was a post from 2016 that never got published lol
Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on overload and at risk of burning out? Well that is where I am this week. James’s been at home because the […]
