The last 24 hours
The day started like any other. I try not to let Dusty know he has an appointment because he will not sleep and get up at the butt crack of dawn. He had an...
Tagged: seizures
November is National Epilepsy Awareness Month
To kick off November National Epilepsy Awareness Month, the Danny Did Foundation is proud to share their new awareness video. The narration is by Danny’s younger brother, Tommy. If you or your family is...
Share this:
Microcephaly, is it what you don’t know what you fear the most?
As most may know this has been in the news a lot lately. What some of you may not know is that my son was also born with microcephaly. Yes, I admit when I...
Share this:
Is this how my day will go?
Hope this is not an early indicator of how my day will go but you see his medicine, his cup of water, a powerade, and the magnet for his VNS stimulator inside his chest....
Share this:
Simplicity is overrated, isnt it?
It’s now 2016. Who would have ever thought we’d see these days come and not be in flying cars like the Jetson’s cartoons. It seemed so doable back them and to now look back...
Share this:
Stitches, flat tires and birthday cake
Have you ever been in one of those periods where you really just want to disconnect from the world around you and just immerse yourself in your own little bubble? Yeah, well that is...
Share this:
Blame me, shame me
We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements....
Share this:
Seizing Halloween
On the last day of the EEG testing and it had gone so well…but wait, there is more. So the technician was scheduled to be here around 9am so I wake Dusty up at...
Share this:
Life is precious
My son… silly that he looks like he works out but he only works fork to mouth. You can see the vagal nerve stimulator in his chest to aid with his intractable seizure disorder...
Share this:
Seized – inside the mystery of epilepsy
http://www.pbs.org/program/seized-inside-mystery-epilepsy/ Originally posted 2017-12-18 10:32:36.
