seizures

Microcephaly, is it what you don’t know what you fear the most?

By |September 15th, 2019|Family|0 Comments

As most may know this has been in the news a lot lately. What some of you may not know is that my son was also born with microcephaly. Yes, I admit when I was young I didn’t know what to expect with my child having this. I opted to give him up for […]

Originally posted 2016-02-01 13:43:35.

Is this how my day will go?

By |September 15th, 2019|Family|0 Comments

Hope this is not an early indicator of how my day will go but you see his medicine, his cup of water, a powerade, and the magnet for his VNS stimulator inside his chest.

Originally posted 2018-10-30 09:05:47.

Simplicity is overrated, isnt it?

By |September 6th, 2019|Family|0 Comments

It’s now 2016. Who would have ever thought we’d see these days come and not be in flying cars like the Jetson’s cartoons. It seemed so doable back them and to now look back on just how far we haven’t come, it makes one wonder just what our future really holds.

Time went so fast […]

Originally posted 2016-01-08 22:58:17.

Stitches, flat tires and birthday cake

By |August 30th, 2019|Family|0 Comments

Have you ever been in one of those periods where you really just want to disconnect from the world around you and just immerse yourself in your own little bubble? Yeah, well that is kind of where I have been this past several, several weeks. Dealing with my husband and his “service connected issues” […]

Originally posted 2015-08-27 02:24:52.

Blame me, shame me

By |July 18th, 2019|Family|0 Comments

We recently had the 72 hour EEG done on Dusty to investigate further just how many seizures he is having, or at least to get a better understanding of some of his random movements. We have wondered for a while now if some of those random movements Dusty makes were muscle spasms or actual […]

Originally posted 2014-11-17 20:07:23.

Seizing Halloween

By |July 15th, 2019|Family|0 Comments

On the last day of the EEG testing and it had gone so well…but wait, there is more.
So the technician was scheduled to be here around 9am so I wake Dusty up at 8:30am so that he could take his medications and be ready when he got here. He gets up, uses the […]

Originally posted 2014-11-02 00:49:03.

Life is precious

By |June 1st, 2019|Family|0 Comments

My son… silly that he looks like he works out but he only works fork to mouth.
You can see the vagal nerve stimulator in his chest to aid with his intractable seizure disorder – I never thought I’d see him reach 25 years old.
He’s had meningitis and with his immune system the way it […]

Seized – inside the mystery of epilepsy

By |May 30th, 2019|Family|0 Comments

http://www.pbs.org/program/seized-inside-mystery-epilepsy/

Originally posted 2017-12-18 10:32:36.

Call It Reefer Magic? FDA-Approved Cannabis-Based Drug Epidiolex Now for Sale in All 50 States

By |May 24th, 2019|Family|0 Comments

Circuits Overload

By |May 22nd, 2019|Family|0 Comments

This was a post from 2016 that never got published lol

Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on overload and at risk of burning out? Well that is where I am this week. James’s been at home because the […]

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