On the last day of the EEG testing and it had gone so well…but wait, there is more.
So the technician was scheduled to be here around 9am so I wake Dusty up at 8:30am so that he could take his medications and be ready when he got here. He gets up, uses the […]
Originally posted 2014-11-02 00:49:03.
My son… silly that he looks like he works out but he only works fork to mouth.
You can see the vagal nerve stimulator in his chest to aid with his intractable seizure disorder – I never thought I’d see him reach 25 years old.
He’s had meningitis and with his immune system the way it […]
http://www.pbs.org/program/seized-inside-mystery-epilepsy/
Originally posted 2017-12-18 10:32:36.
This was a post from 2016 that never got published lol
Have you ever felt as if your circuit board is on overload? Like the wires, connections in your body’s circuit board is on overload and at risk of burning out? Well that is where I am this week. James’s been at home because the […]
Would you believe I just got this bill out of no where?
This stems from my son’s oral maxillofacial surgery in 2013.
All costs were supposed to be covered by insurance and grants from the state.
First and last time I received anything regarding a bill was a year after the surgery. Then, today.
I am not really […]
In a first-in-world clinical trial, researchers at The Ohio State University College of Medicine are studying how well focused ultrasound surgery works in adults with a specific type of epilepsy whose seizures are not controlled by medication.
Up to 10 adults with the “medically refractory lobe focal onset” type of epilepsy will be enrolled in this study. The technique […]
You live with someone who has seizures you are always on the look out for the next one. In Dusty’s case we never know if he is sitting there having one don’t realize know it. We have been trying to figure out just how many seizures he is having so that the doctors can […]
Originally posted 2014-10-28 21:19:24.
